Wednesday, November 30, 2011
Celebrating Jordan's Life
Although not physically present, so many people knew about Jordan's battle for life. The memorial will hopefully be a beautiful memory of his life. We will have the opportunity to share Jordan's Legacy, a post intended for his site but we saved it for the memorial. There will also be a short video and Celebration Community Church was generous enough to accommodate us. Our hope is that everyone leaves having the opportunity to have been as close to him as possible. Jordan is greatly missed and was such a beautiful baby boy. We are proud that he is our son.
Tuesday, November 29, 2011
Planning for the Memorial
Plans are falling into place as we look forward to the memorial this Thursday at 6pm. Baby Jordan touched a lot of people and we want to make the memorial special. As hard as it's been, we find that it helps us emotionally to work through some of the material. It reminds us of Jordan and our journey together.
It is simply amazing that we were connected with the pastor that we had blogged about while in Philadelphia. He has been wonderful at helping us gather our thoughts and emotions during this difficult time to plan the memorial. It is a small world after all. So many people are either working hard to prepare or are offering assistance. It has been truly a blessing to see how many people are willing to help.
It is simply amazing that we were connected with the pastor that we had blogged about while in Philadelphia. He has been wonderful at helping us gather our thoughts and emotions during this difficult time to plan the memorial. It is a small world after all. So many people are either working hard to prepare or are offering assistance. It has been truly a blessing to see how many people are willing to help.
Saturday, November 26, 2011
Memorial Services for Baby Jordan
Services will be held at 6:00 p.m. Thursday, December 1, 2011 at Celebration Community Church in Hays.
5790 230th Avenue
Hays KS 67601
United States
Hays Memorial Chapel Funeral Home is handling the arrangements. All who would like to attend are invited to mourn with us, as well as celebrate the life of baby Jordan.
5790 230th Avenue
Hays KS 67601
United States
Hays Memorial Chapel Funeral Home is handling the arrangements. All who would like to attend are invited to mourn with us, as well as celebrate the life of baby Jordan.
Home At Last
Our arrival home wasn't dramatic. We rolled in under the guise of night. By three in the morning, traffic was sparse. It was strange to walk into our house after all this time. Our first comment to each other was that it looked better than we remember. Caleb barely slept at all on the way home because of his anticipation. His reaction upon seeing our home for the first time in months was priceless. He slowly took it all back in as he began remembering his own toys and bed. Every room was inspected and named before he could calm down to go to sleep. "This is Caleb's room. This is Mommy and Daddy's room. Here's my toy box with all my toys."
Although hard to comprehend that Jordan cannot be with us, we are very glad to be home. Many thanks to everyone who helped purchase food and stock our refrigerator and pantry for our arrival. That was very thoughtful and helped more than you know.
Although hard to comprehend that Jordan cannot be with us, we are very glad to be home. Many thanks to everyone who helped purchase food and stock our refrigerator and pantry for our arrival. That was very thoughtful and helped more than you know.
Friday, November 25, 2011
Bad Dreams, Blessed Memories
As if this journey wasn't hard enough to endure by itself, dreams sneak up and make it all the more difficult. When Jordan was still in the hospital, Michael had a dream that Jordan was released, even though he still required the occasional hand-bagging. We all went out to enjoy a celebratory meal. Then, like a monster sneaking up in the night to say "gotcha", Jordan started gasping, begging for air. Michael desperatley tried to hand-bag Jordan back to life, but couldn't. It was too late.
Michael awoke, startled and heart racing. Seems like such a silly dream but, given the circumstances, it took a good ten minutes to calm down again. Dreams still plague Daddy - sending him back to the hospital to experience familiar sights and sounds from the last month. It happens when we're awake too. The sound of a restaurant's heater kicks on and sounds like the steady rhythm of the oscillator. Aromas remind us of the smell of Jordan's baby skin.
Other parents of babies with severe CDH at CHOP had similar experiences. It is such an overwhelming and tragic experience. Hard not to walk away with some sort of trauma. What do we hold on to that will counteract these bad dreams? Blessed memories... The deep peace Brandi felt during labor and pregnancy. Jordan opening his eyes and looking at us for the first time. His big, warm infant hand clenching our finger - showing us how strong and determined he was. The unexpected peace he felt when we embraced him in our arms for the first and last time.
Life has a rude way of nudging people forward. Reality comes crashing in, thrusting you back into every day events. It never even crossed our minds that we would have to plan a memorial for Jordan. His body is not expected to arrive in Hays until tomorrow; possibly the same time as us. The memorial will be in Hays; however, a date and time have not been set. It will be difficult to enter our house, to see the baby room without our baby. We are thankful for everyone's support and wish to see everyone who would like to visit. But, it will take time to adjust. We have a lot to do and our focus will immediately go to planning the memorial. There will be much more time and closure after the memorial.
Michael awoke, startled and heart racing. Seems like such a silly dream but, given the circumstances, it took a good ten minutes to calm down again. Dreams still plague Daddy - sending him back to the hospital to experience familiar sights and sounds from the last month. It happens when we're awake too. The sound of a restaurant's heater kicks on and sounds like the steady rhythm of the oscillator. Aromas remind us of the smell of Jordan's baby skin.
Other parents of babies with severe CDH at CHOP had similar experiences. It is such an overwhelming and tragic experience. Hard not to walk away with some sort of trauma. What do we hold on to that will counteract these bad dreams? Blessed memories... The deep peace Brandi felt during labor and pregnancy. Jordan opening his eyes and looking at us for the first time. His big, warm infant hand clenching our finger - showing us how strong and determined he was. The unexpected peace he felt when we embraced him in our arms for the first and last time.
Life has a rude way of nudging people forward. Reality comes crashing in, thrusting you back into every day events. It never even crossed our minds that we would have to plan a memorial for Jordan. His body is not expected to arrive in Hays until tomorrow; possibly the same time as us. The memorial will be in Hays; however, a date and time have not been set. It will be difficult to enter our house, to see the baby room without our baby. We are thankful for everyone's support and wish to see everyone who would like to visit. But, it will take time to adjust. We have a lot to do and our focus will immediately go to planning the memorial. There will be much more time and closure after the memorial.
Thursday, November 24, 2011
Swimming in Effington
It's funny that he even remembers, but big brother Caleb has been asking to go swimming ever since we arrived in Philadelphia back in August. Daddy finally granted him the request and booked a hotel in Effington, Illinois with an indoor swimming pool. Caleb had a blast and thanked us all evening saying, "That was lots of fun!"
Let's just say he's going to enjoy being the center of attention again.
Let's just say he's going to enjoy being the center of attention again.
Thanksgiving
Thanksgiving. One of our favorite times of the year. Typically, it is a time set aside for rest, enjoying the company of those we love and giving thanks for our blessings. In reflecting, this may be the first Thanksgiving either of us haven't spent with our families. Our Thanksgiving Day plans this year included attending the big Thanksgiving Day dinner at The Ronald McDonald House and spending some time with our host family. Our hope was that Jordan would be doing well enough that we could take a break from the hospital. It was not in our plans to be driving home today.
As we traverse the long stretch of road between us and home, we can't help but feel lonely. We all miss Jordan greatly. He was a precious little boy and our time was cut short. Today, we have a deeper understanding of Thanksgiving. We thank God for those special 34 days we had with Jordan. We are thankful for His provision for making this trip possible. If it wasn't for our time at CHOP, our time with Jordan would have been much shorter. We are so thankful for Caleb. The time we spend together as a family is so precious.
Although this is not a happy Thankgiving for our family, we are filled with a deep sense of peace. Hoping that all of our family and friends have a peaceful Thanksgiving.
As we traverse the long stretch of road between us and home, we can't help but feel lonely. We all miss Jordan greatly. He was a precious little boy and our time was cut short. Today, we have a deeper understanding of Thanksgiving. We thank God for those special 34 days we had with Jordan. We are thankful for His provision for making this trip possible. If it wasn't for our time at CHOP, our time with Jordan would have been much shorter. We are so thankful for Caleb. The time we spend together as a family is so precious.
Although this is not a happy Thankgiving for our family, we are filled with a deep sense of peace. Hoping that all of our family and friends have a peaceful Thanksgiving.
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