After what seemed like a very long day, we finally made it to Philadelphia. Road construction slowed us down yet again. We also ran into a severe thunderstorm that had large hail, heavy winds and rain, and the possibility of producing a tornado - not that much different than Kansas after all. Thankfully, we were able to let the storm pass and follow it on the interstate for a while - sometimes driving at 10mph.
We felt a combination of both excitement and relief when we finally reached Philadelphia. Out trip covered three days as we crossed Kansas, Missouri, Illinois, Indiana, Ohio, West Virginia and Philadelphia. Our host, Kathleen, was very warm and receptive. She lives in a beautiful old home and sculpts for a living. We are very fortunate to have the opportunity to stay in someone else's house - what a great concept to help families facing this situation. Still, it is not home and it takes a lot of patience to get things organized and feel like we can continue with the days ahead. It is very draining and we have been running short on sleep.
Our next appointment at CHOP is scheduled for tomorrow morning.