Thursday, August 25, 2011

Monday, August 22nd

Our drive to the hospital made us fully aware that we are not in Kansas anymore.  The streets here are narrow and packed with traffic.  Cars chirp at each other often with honking and other expletives.  Neighborhoods are packed together tightly and change frequently from beautiful old homes - some large and some small - to streets lined with houses, wall-to-wall without any gaps.

We are so excited that Caleb was able to go along with us. He absolutely loved CHOP because of the amazing display in the entrance - cars that go back and forth and a maze that you can manipulate by turning gears and pressing buttons. Our son even figured out how to get into the glass display by running his hand under the enclosure and reaching up! He could have stood there and watched that for hours. We also got to see the studio that the Ryan Seacrest Foundation had setup in the hospital (

Our appointment went very well.  Jordan's LHR has increased to a 1.8 (his first ratio was about 0.8).  CHOP explained that the LHR is most telling between 25-28 weeks - Jordan's LHR was 1.5 which is pretty good for CDH; especially when the liver is up.  Also, they believe that only a small portion of the liver is up at this time. Basically, even though Jordan's lungs are restricted, they have been growing as he has grown.  They also mentioned that it is common for fluids to get backed up in the organs because of the constriction.  Jordan's stomach is not kinked and his heart looks very good.  Thank you to everyone who has been praying for our family and our son, Jordan.


  1. Praise God for a good report. We will be continuing to pray for more good reports in the future. God is so good!

  2. Thank you Kelly for all your prayers and support! Hope you are doing well...