Jordan's second day of life has gone much better than his first. His numbers have been trending upwards. His oxygen support levels have come down 50% and the oscillator is doing too much of the work - meaning they are scaling it back a little at a time to see how he handles the change. They tried doing this last night and Jordan didn't like it very much.
From a bird's eye view, Jordan is beating their expectations. As severe as his condition is, he is doing extremely well. Jordan is the boss right now and they are following his lead. We are so proud of him!
The next goal is to see if Jordan can rely on the oscillator less and remain stable. He needs to remain stable long enough to allow some of the pulmonary hypertension to ease. Once he is stable long enough, they can perform his repair. We may be days or weeks out from the repair; it all depends on how he continues to handle treatment.
Unfortunately, grandma and grandpa Legleiter have to head back to Kansas today. They have been a huge help and will be greatly missed. The First United Methodist Church in Hays will be holding a soup luncheon this Sunday to help raise donations. Grandma and Grandpa are heading back to be a part of that. We can't thank everyone enough for your prayers and support. The response and feedback from everyone has bee encouraging and uplifting.